(18-25yo)
Support & Resources:
Websites
Crohn’s and Colitis Foundation of America
800-932-2930
www.ccfa.org
Coloplast
www.coloplast.com/ostomycare/pages/ostomycare.aspx
Convatec Inc.
www.convatec.ca/ostomy/living-with-an-ostomy/caring-for-a-child-with-an-ostomy/
Hollister, Inc.
www.hollister.com/en/ostomycare/ostomycareprofessionalresources/resourcesforyourpatients/ostomypediatric
Newbieostomy, find a support group in your area
newbieostomy.com/get-support/ostomy-support-groups/
Pull Thru Network
205-978-2930
www.pullthrunetwork.org
Shop Ostomy Supplies
www.shopostomysupplies.com/ar-teenage-ostomy-making-it-less-awkward.html
United Ostomy Association of America
800-826-0826
www.ostomy.org
Wound, Ostomy and Continence Nurses Society (WOCN)
cdn.ymaws.com/member.wocn.org/resource/resmgr/document_library/Teen_Chat_You_&_Your_Ostomy_.pdf
Books
Benirschke, R. Great Comebacks from Ostomy Surgery (The inspirational stories of 15 people who have survived and thrived following ostomy surgery.)
Benirschke, R. Embracing Life: Great Comebacks from Ostomy Surgery. (Follow-up to Rolf’s Great Comebacks from Ostomy Surgery and his autobiography Alive & Kicking)
Benirschke, R. Alive & Kicking. (The true story an NFL star’s battle with ulcerative colitis, ostomy surgery and hepatitis C).
Elsagher, B. It’s in the Bag & Under the Covers. (People with ostomies that share dealing with dating, intimacy, sex and caregiving).
Kupfer, B, Foley-Bolch, K, Kasouf, MF & Sweeney, WB. Yes, We Can! (Advice on Traveling with an Ostomy and Tips for Everyday Living).
Mullen, BA & McGinn, KA (2008). THE OSTOMY BOOK: Living Comfortably with Colostomies, Ileostomies and Urostomies
Prosser, E. & P. Unwanted Baggage. A Resource Guide for Ostomy Patients and Those Who Share Their Lives
Rayson, E (20120. Living with an Ostomy. (Covers the practical aspects of ostomy care and coping).
White, CA. Positive Options for Living with Your Ostomy (Covers practical and emotional aspects and provides psychological adjustment advice that doctors, surgeons and nurses may not give).
Toolkits
A Guide to Gutsy Living, Patient Advisory Council for the Improve Care Now Network (ICN): Network’s website bit.ly/2EnkIBX
Facebook + Twitter
Facebook: Life with an Ostomy, Ileostomy, colostomy, stoma and bowel support, Colostomy and Stoma Support Group.
Twitter: Everything Ostomy, Doctor with a Stoma
Hope, support, and finding community